Update on Trey (written from my mom)

I want to keep you updated on Trey. It isn't good news right now, but Trey, Heidi and Allen are in good spirits (or as good as one can be at this point in time),still in shock to some degree, but now that they know what is happening they are getting ready for the battle. I spoke to Heidi last night and this is the report so far:

Heidi really likes his doctor. Dr. Storch is very good and she is being very upfront with them. Nurses and staff are very helpful. Heidi/Allen are able to stay there at night.

Trey has started his treatments.He is on a very agressive treatment regime. He is having nausea and is very tired. He doesn't sleep well at night because the mass in his chest makes breathing difficult. There is still some fluid surrounding the heart and this is being watched very closely.He had a spinal tap yesterday and they found cancerous cells in the spinal fluid which is not a good sign. This means it has spread and can affect the brain.

They will be testing family members for compatibility as bone marrow donors. Siblings are the best hope for a match, then they will go to parents and grandparents. It isn't the blood type that matters, but other factors. This is precautionary right now, so they will be prepared if he needs it.

This is a fast growing and agressive lymphoma/leukemia. Even though it is the type that responds to treatment quite well in children, it is more difficult to treat with success in adults. The fact Trey doesn't have a spleen is also a concern.

He will be in the hospital for at least a month. This is to monitor his reaction to the treatments. He will be having spinal taps on a regular basis, but since they put him out, he is able to handle them without too much discomfort. Trey will be under an intensive treatment regime for the next 2-3 years, depending on his response.

He is very very ill and is literally fighting for his life.

He is at the Kaiser Permanente Medical Center, Woodland Hills
The address is: 5601 De Soto Ave, Woodland Hills, CA 91367
The phone # is: 818-719-3220, room 2106

He can have phone calls and visitors, however always call first if you wish to visit. He may be too ill to have you there. If you have been sick, or around someone who has been sick DO NOT VISIT. He has no immunity now and that would be devastating for him.

He cannot have plants or flowers in his room. He can only have fruit that can be washed well and/or peeled. Fast food has to be microwaved at the hospital. Cards, banners, books, pictures are welcome.

Heidi would prefer to relay updates on Trey through emails such as this. She appreciates your calls and texts but she can't or won't answer depending on the circumstances at the time of your call. Don't be offended, she just can't worry about anyone right now but Trey and its difficult to have to repeat the same information to each person who calls or texts.

I realize most of us won't be able to visit any time soon but just so we all know. For some, this may be info you've already heard, my apologies.

Your thoughts and prayers are so important. Thank you. I know the support of ALL family members makes a difference. Heidi stated she appreciates them and feels the strength they bring. We know Heavenly Father is in charge, as Heidi put it, and we need to have faith Trey will be with us for many years.